Network Friendly Organizations


ABROAD

Network Neuromuscolare TREAT-NMD “Accelerating Treatments for Neuromuscular Diseases” logo

Network Neuromuscolare TREAT-NMD “Accelerating Treatments for Neuromuscular Diseases”

GFB is a member of the TREAT-NMD Neuromuscular Network “Accelerating Treatments for Neuromuscular Diseases”, which deals with accelerated treatments for Neuromuscular diseases.

Certificate

Limb Girdle Muscular Dystrophy Awarness Day logo

Limb Girdle Muscular Dystrophy Awarness Day

GFB partners with Limb Girdle Muscular Dystrophy Awareness Day, (LGMD Awareness Foundation, Inc. is anon-profit organization) dedicated  to raising awareness of Limb girdle muscular dystrophy globally. In partnership with other Limb girdle muscular dystrophy associations, it aims to provide accurate educational information and resources for the LGMD community and public.

eurordis

EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 944 rare disease patient organisations in 73 countries.
We are the voice of 30 million people affected by rare diseases throughout Europe.

Italy

Associazioni in rete di Telethon logo

Associazioni in rete di Telethon

GFB is part of Associazioni in rete of Telethon, with the objectives of collaboration, participation and sharing to improve the lives of people affected by a rare genetic disease and to advance together towards
treatment.

UILDM logo

UILDM

GFB has an agreement with UILDM, signed on October 18, 2014 in Lido di Venezia, in which GFB and UILDM are committed to the achievement of common objectives and collaboration in specific activities.

read the text of the agreement.

Research4life logo

Research4life

GFB is one of the 61 entities involved in the Research4life network, a space where to inform the public (citizens, institutions, media and the scientific world) and propose ideas for the development of biomedical
research.

Consulta Malattie Neuromuscolari Piemonte logo

Consulta Malattie Neuromuscolari Piemonte

GFB participates in the Consulta Malattie Neuromuscolari Piemonte, a network that brings together 14 associations and groups of patients with neuromuscular diseases operating in the territories of Piemonte and Valle D’Aosta in Italy.

Coordinamento Associazioni Malattie Neuromuscolari  CAMN  logo

Coordinamento Associazioni Malattie Neuromuscolari CAMN

GFB is a member of the CAMN Neuromuscular Diseases Association Coordination, a common front, a force capable of deepening and supporting the development, on a national scale, of scientific, political and social issues concerning muscle pathologies.

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