LET'S PARTICIPATE WITH GFB AT THE RARE DISEASE DAY - FEBRUARY 28th 2021
World Rare Disease Day will reach its fourteenth edition on February 28, 2021 and promotes equity worldwide as access to equal opportunities that can enhance the potential of people with rare diseases.
PARTICIPATE IN THE PROJECT LET'S TURN THE LIGHTS ON RARE DISEASES
We ask you to join the awareness campaign "Let's turn the lights on rare diseases", promoted by Uniamo Italian Federation of Rare Diseases, italian national coordinator of the Day. The initiative will take place on February 28th and will be picked up by the local and national press as well as on the Federation’s official social networks.
In particular, we ask you to illuminate a monument in your city, in the colors of the day (blue, pink, purple, green or one of your choice). GFB is organizing the event in some Italian cities, participating is simple, we give you a form to fill out and you have to deliver it to your municipality.
To participate: This email address is being protected from spambots. You need JavaScript enabled to view it. or 3493374060.
GFB MEMBERSHIP:
TALAMONA, city hall
SCHIO, statue of the weaver in Piazza Rossi
CANAZEI, city hall
SONDRIO, bell tower of the collegiate church
MORBEGNO, small temple of the Alpine troops
VALDISOTTO AND BORMIO, Sanctuary of Oga - Beata Vergine di Caravaggio
TAKE PART IN THE TULIPS PROJECT
Do you want to receive a tulip bulb for rare disease day? Some European associations, including GFB, are sending them to their patients / supporters. Participation is free for everyone. Then you will have to undertake to take care of it and when it is in bloom you will send us your photograph with the tulip.
Send your request to: This email address is being protected from spambots. You need JavaScript enabled to view it. or 3493374060.
PARTICIPATE IN OTHER NATIONAL AND EUROPEAN INITIATIVES
- Hits: 19