Other LGMD Resources


LGMD Grant Opportunities

Living with a progressive neuromuscular disease such as Limb Girdle Muscular Dystrophy can be financially challenging at times.  There are many disability related costs that public and private insurance do not typically cover.  Below are some resources that may be able to provide assistance to help offset the financial burden.

Links to organizations offering grant opportunities:

https://lgmd-info.org/lgmd-grant-opportunities/

LGMD Specialists – Physicians

One of the challenges of living with a rare disease such as Limb Girdle Muscular Dystrophy (LGMD) is finding physicians and other health care specialists who have a good understanding of the disease process.

List of LGMD Specialists – LGMD GRASP Consortium:

https://lgmd-info.org/lgmd-specialists/

LGMD Clinical Trials & Natural History Studies

Clinical Trials and Natural History Studies are vital for advancing research to help find a treatment and cure for LGMD 

ClinicalTrials.gov  – This is a searchable registry and results database of federally and privately supported clinical trials conducted in the United States and around the world.

Biotech and Pharmaceutical Companies 

ORPHANET

You can also consult the ORPHANET portal, in the sections

  • RESEARCH PROJECTS IN PROGRESS, EXPERIMENTATIONS
  • EXPERT CENTERS
  • ORPHAN DRUGS
  • PROFESSIONALS AND INSTITUTES
     

https://www.orpha.net/consor/cgi-bin/index.php?lng=IT

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