Experiences and stories


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INDIVIDUAL WITH LGMD: Osman


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https://www.lgmd-info.org/

LGMD “SPOTLIGHT INTERVIEW” by Osman who lives with LGMD2D/R3 

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Teaching what she knows: the story of daneal


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Limbgirdle.com

For some people, receiving a diagnosis of LGMD can take many years. for Daneal, whose symptoms began in childhood, it took more than three decades—long after her teaching career had begun—to learn that she lives with limb-girdle muscular dystrophy. she shares her thoughts about the journey.

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the story of johann: Patient with α-Sarcoglycanopathy (LGMD-R3)


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Atamyo Therapeutics

“My life is frail, but I want it to be full, I don’t want it to be ordinary, I want it to be extraordinary and for that I need help. I have someone helping me 24/7.”

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the story of shanna who has LGMD2C (or LGMDR5)


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Sarepta Therapeutics

Leading up to Rare Disease Day, we're raising awareness of the 300+ million people living with a rare disease. People like Shanna, who has LGMD2C or LGMDR5. Watch and share her story to raise awareness.

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The Story of Apollo, Patient with Gamma-Sarcoglycanopathy (LGMD-R5)


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Atamyo Therapeutics

When I found about about my disease I remember thinking that my life was over. 

 

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