Experiences and stories

A story of inner strength: Raising two kids with LGMD

When a child is diagnosed with limb-girdle muscular dystrophy (lgmd), it can present new challenges and responsibilities for the parents. mother of four and full-time caregiver Nicky describes her journey before and after her kids Savanna, 13, and Ryder, 11, were diagnosed with lgmd.

Read the entire story here: https://limbgirdle.com/stories/story-inner-strength-raising-two-kids-lgmd

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Making the best of an early LGMD diagnosis

Limb-girdle muscular dystrophy (lgmd) is often diagnosed following a series of physical clues. but for five-year-old jacob, his diagnosis came out of nowhere. jacob’s mom, rachel, recounts her journey from making this shocking discovery to fighting for his chance to grow up like any other kid.

Read the article here: https://limbgirdle.com/stories/making-best-early-lgmd-diagnosis

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