Jessica and Oriol - Proyecto Alpha

Written on . Posted in Patients projects.


Limb girdle muscular dystrophy association for Sarcoglycan deficit

WEBSITE:  www.proyectoalpha.org 
FACEBOOK:  Proyecto Alpha
INSTAGRAM: proyectoalpha_

Proyecto Alpha is a Spanish non-profit association created  by Jessica and Oriol, to help affected people and their families who suffer from Limb girdle muscular dystrophy,  due to a deficiency of some of the proteins that make up the Sarcoglycan complex  (Type: Alpha, Beta, Gamma and Delta)