| News

WATCH THE GFB WEBINAR ON THE NATURAL HISTORY STUDY JOURNEY

This week, Sarepta's JOURNEY natural history study opened in Italy and the UK. It is currently only active in the US, but will in the future involve 30 clinical centres on various continents. The study involves patients with LGMDR3-2D, R4-2E, R5-2C. GFB held a webinar on Saturday February 12th 2022, where Prof. Yvan Torrente explained the JOURNEY study and how to participate in the project. The webinar was held in English and Italian.

Click HERE to watch the WEBINAR

 

©2020 GFBONLUS.IT - GRUPPO FAMILIARI BETA-SARCOGLICANOPATIE
+39 328 0075986 This email address is being protected from spambots. You need JavaScript enabled to view it.

Via Civasca 112 23018 Talamona - SO  Italia

Made by Betsoft

Sign Up Today!

Sign up to be included in the GFB Lgmd Patient Network where you will receive cutting edge research updates from the leading experts in the world and also be invited to hear about new clinical trials.
Anyone can join the GFB Lgmd Patient Network.
 
Sign Up