The QUALITY Project is promoted by the GFB organization to structure international patients data collected in past years, study the patients' quality of life and encourage the participation of patients in natural history studies and clinical trials.

The Quality Project runs fast: more than 200 questionnaires have been completed with 153 patients involved.

If you want to participate in the Quality Project and contribute to the quality of life study, you can find more information at the link: https://www.beta-sarcoglicanopathy.org/2-uncategorised227-the-quality-project.html