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INDIVIDUAL WITH LGMD: Arthur


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A short interview with Arthur, 9 years old, talking about his life with LGMD 2C/R5 Gamma Sarcoglycan-related.

Read the full article here: https://www.lgmd-info.org/2022/08/13/5855/

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Making the best of an early LGMD diagnosis


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Limb-girdle muscular dystrophy (lgmd) is often diagnosed following a series of physical clues. but for five-year-old jacob, his diagnosis came out of nowhere. jacob’s mom, rachel, recounts her journey from making this shocking discovery to fighting for his chance to grow up like any other kid.

Read the article here: https://limbgirdle.com/stories/making-best-early-lgmd-diagnosis

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Teaching what she knows: the story of daneal


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Limbgirdle.com

For some people, receiving a diagnosis of LGMD can take many years. for Daneal, whose symptoms began in childhood, it took more than three decades—long after her teaching career had begun—to learn that she lives with limb-girdle muscular dystrophy. she shares her thoughts about the journey.

Read the article

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INDIVIDUAL WITH LGMD: Osman


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https://www.lgmd-info.org/

LGMD “SPOTLIGHT INTERVIEW” by Osman who lives with LGMD2D/R3 

Read the article

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the story of shanna who has LGMD2C (or LGMDR5)


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Sarepta Therapeutics

Leading up to Rare Disease Day, we're raising awareness of the 300+ million people living with a rare disease. People like Shanna, who has LGMD2C or LGMDR5. Watch and share her story to raise awareness.

watch the video

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