| Experiences and stories

MANDINE: innocence in combat

lgmd.afm-telethon.fr/

 

Behind the first difficulties and the first symptoms;

behind the wandering of the medical profession in the face of disease and the fight to have a diagnosis;

behind the falling ax, the tears and the incomprehensible vocabulary "progressive genetic disease", "incurable", "calpainopathy (LGMD R1 / ex. LGMD 2A)";

there was a little voice whispering to me:

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