the story of johann: Patient with α-Sarcoglycanopathy (LGMD-R3)
“My life is frail, but I want it to be full, I don’t want it to be ordinary, I want it to be extraordinary and for that I need help. I have someone helping me 24/7.”
“My life is frail, but I want it to be full, I don’t want it to be ordinary, I want it to be extraordinary and for that I need help. I have someone helping me 24/7.”