Events

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Events 2022

Written on 03 March 2022. Posted in Events.

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GFB webinar on Natural history study JOURNEY - 12th February 2022

GFB participated at Rare Disease Day - 28th February 2022

GFB 9th interview on Spazio Libero Rai Parlamento Rai 3 - Updates on the scientific research - "Spazio Libero" Rai Parlamento Rai 3 - 8th March 2022

GFB is participating at the "Never stop moving" documentary premiere - Barcelona - 9th March 2022

GFB is participating at the Neuromuscular Disease Day - GMN - Italy - 12th March 2022

Doctor Carles Sanchez Riera is presenting at LGMD Global Advocacy Summit - 2022 LGMD Global Advocacy Summit GFB presentation from minute 01.08.20- 20th May 2022

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Events 2021

Written on 05 December 2021. Posted in Events.

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GFB participated at Rare Disease day 2021 - 28 febbraio 2021

GFB participated at GNM - Giornata delle Malattie neuromuscolari (Neuromuscular diseases day) - 13 marzo 2021

GFB interview at Spazio Libero Italian TV - Rai Parlamento Rai 3 - 14 giugno 2021

GFB participated at LGMD International conference - 17-20 settembre 2021

GFB participated at the Webinar oganised by AIM Associazione Italiana Miologia (Italian myology association) - 4 dicembre 2021

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Everybody to the mountains with the “trekking chair”

Written on 23 July 2020. Posted in Events.

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Some among us loved mountains, summer trekking, mountaineering ski, winter cross-country skiing. It happened that because of our children disease we had to leave our loved mountains.

But now we found a way to come back: the “trekking chair”, is an aid towed by three people.

Since 2010 we organized some hikes nearby Sondrio mountain district. We think to be able to use it also in winter, on the snow, changing wheels with ski.

Then it is our wish to participate to the Spanish pilgrimage to “Santiago de Compostela”, along the last 100 kilometres of the way.

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Events 2020

Written on 18 August 2020. Posted in Events.

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May 2020 - First GFB zoom meeting with Italian patients

GFB evento 2020 1

June 30th 2020 - Meeting zoom with the Premana group, Friends of Gloria and Samuel

GFB evento 2020 2

August 13th 2020 - Second GFB zoom meeting with Italian patients

GFB evento 2020 3

September 30th 2020 - Third GFB zoom meeting in English with international patients - LET'S MEET

GFB evento 2020 4

Dicember 29th 2020 - Forth GFB zoom meeting with italian patients

gruppo quarto incontro 300

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Events 2019

Written on 31 December 2019. Posted in Events.

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May 19th 2019 - Day in Bema (SO), in collaboration with the Gioia Group and the Pro Loco Bema.

May 31th June 1st 2nd 2019 - MotoGP Grand Prix - Mugello (FI).

June 30th 2019 - "K2Valtellina" event, day at the Pedroria alp - Talamona.

August 12th 2019 trip to St. Moritz Switzerland with the Bernina red train, in collaboration with the Gioia Group

August 29th -September 7th National LGMD conference Chicago USA

September 12th-14th 2019 MotoGP Grand Prix - Misano Rimini, in collaboration with the Gioia Group

September 28th 2019 Sixth social dinner of the GFB Onlus "Happy Fish" - Pianello del Lario (CO)

November 1st 2019 - 6 Wheels of Hope Monza Circuit (MB).

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Events 2022

Events 2021

Everybody to the mountains with the “trekking chair”

Events 2020

Events 2019

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