On Youtube, you can watch the GFB scientific webinar organized on 25 November 2022.
Prof. Isabelle Richard presented the gene therapy projects for LGMDs developed by Atamyo Therapeutics (LGMD2I/R9, LGMD2A/R1, LGMD2B/R2, LGMD2C/R5, LGMD2D/R3)
The webinar was held in English only but subtitles are available.
On Youtube, you can watch the GFB scientific webinar organized on 15 November 2022.
During this GFB science webinar, Prof. Volker Straub (University of Newcastle, UK) provides an overview of LGMD patient registries and updates on ongoing gene therapy projects for LGMD.
The webinar was held in English only but subtitles are available.
28th February 2023 | GFB participation in Rare Disease Day 2023
28th February 2023 | GFB 10th Anniversary
10th April 2023 | GFB's 10-year anniversary lunch
8-10th June 2023 | GFB participation in the AIM Congress in Padova, Italy
GFB will participate in the AIM 2022 congress organized by the Italian Association of Myology. The congress will be held in Matera, Italy from the 19th to the 22nd October.
Lucica Bianchi (GFB Head of the communication office and social media manager) will present the poster "Observational study: the quality of life of patients with alpha-sarcoglycan, beta-sarcoglycan and gamma-sarcoglycan gene mutation" and will participate in the Round Table session: Meeting With Patients Associations scheduled for Saturday 22 October.
