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JOURNEY NATURAL HISTORY STUDY

Sarepta's JOURNEY natural history study opened in Italy and the UK this week. It is currently active only in the United States, but it will involve 30 clinical centers on various continents in the future. The study concerns patients with LGMDR3-2D, R4-2E, R5-2C. GFB will hold a webinar on Saturday 12th February, in which Prof. Yvan Torrente will explain the JOURNEY study and how to participate in the project. The webinar will be in English and Italian.

Registration is now open on the GFB website at the link: www.lgmd2e.org

More information at this link: https://clinicaltrials.gov/ct2/show/NCT04475926?cond=LGMD2E&draw=2&rank=3

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