Privacy policy

Written on . Posted in Uncategorised.





GFB ONLUS in its capacity of Data Controller of your personal data, pursuant to and for the purposes of EU Reg. 2016/679 hereinafter referred to as 'GDPR', hereby informs you that the aforementioned legislation provides for the protection of data subjects with respect to the processing of personal data and that such treatment will be based on principles of correctness, lawfulness, transparency and protection of your privacy and your rights.

Your personal data will be processed in accordance with the legislative provisions of the aforementioned legislation and the confidentiality obligations set forth therein.


Purpose of processing: in particular, your data will be processed for the following purposes related to the implementation of obligations relating to legislative or contractual obligations:


-contact the user. Personal Data collected: name and surname; e-mail; telephone number;

-technical and functional access to the Site no data is kept after closing the Browser;

-Advanced navigation purposes or personalized content management;

-Statistics and analysis purposes of navigation and users.


The processing of functional data for the fulfillment of these obligations is necessary for proper management of the relationship and their provision is mandatory to implement the purposes indicated above. The Data Controller also announces that any non-communication, or incorrect communication, of one of the mandatory information, may cause the Data Controller to be unable to guarantee the adequacy of the processing itself.

Your personal data may also, with your consent, be used for the following purposes:


-Marketing and Advertising purposes.


The provision of data is optional for you with regard to the aforementioned purposes, and your refusal to process it does not compromise the continuation of the relationship or the adequacy of the treatment itself.


Processing methods. Your personal data may be processed in the following ways:

- by electronic calculators using software systems managed by third parties;

- temporary treatment in anonymous form.


Each treatment takes place in compliance with the procedures set out in articles 6, 32 of the GDPR and by adopting the appropriate security measures provided.


Communication: your data will be communicated exclusively to competent and duly appointed subjects for the performance of the services necessary for proper management of the relationship, with a guarantee of protection of the rights of the interested party.  

Your data will be processed only by personnel expressly authorized by the Data Controller and, in particular, by the following categories of employees:


- Administration office.


Your data may be disclosed to third parties duly appointed as Data Processors, in particular to:


Dissemination: Your personal data will not be disclosed in any way.

Your personal data may also be transferred, limited to the purposes indicated above, in the following states:


- EU countries;

-United States.


Retention period. We point out that, in compliance with the principles of lawfulness, purpose limitation and data minimization, pursuant to art. 5 of the GDPR, the retention period of your personal data is: 

- established for a period of time not exceeding the achievement of the purposes for which they are collected and processed for the execution and fulfillment of the contractual purposes;
- established for a period of time not exceeding the performance of the services provided;
- established for a period of time not exceeding the achievement of the purposes for which they are collected and processed and in compliance with the mandatory times prescribed by law
Cookie management: in the event that you have doubts or concerns regarding the use of cookies, you can always intervene to prevent them from being set and read, for example by changing the privacy settings in your browser in order to block certain types.

 Since each browser - and often different versions of the same browser - also differ significantly from each other, if you prefer to act independently through your browser preferences, you can find detailed information on the necessary procedure in your browser guide. For an overview of the modes of action for the most common browsers, you can visit

Advertising companies also allow you to opt out of receiving targeted ads if you wish. This does not prevent the setting of cookies, but interrupts the use and collection of some data by these companies.


For more information and the possibility of waiver, visit

Owner: the Data Controller, pursuant to the Law, is GFBONLUS.IT - BETA-SARCOGLICANOPATIE FAMILY GROUP Via Civasca 112 Talamona Sondrio 23018 Italy - Telephone 3280075986, This email address is being protected from spambots. You need JavaScript enabled to view it.