GFB SCIENTIFIC WEBINARS

GFB organizes periodic scientific webinars on LGMDs on gene therapy studies, natural history studies and patient registries.

WEBINAR ON UPDATES ON ONGOING GENE THERAPIES DEVELOPED BY ATAMYO THERAPEUTICS

25th November 2022  | Prof. Isabelle Richard (DR1 CNRS Genethon - France)

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WEBINAR ON UPDATES ON ONGOING GENE THERAPIES PROJECTS FOR LGMDs

15th November 2022 | Prof. Volker Straub (University of Newcastle)

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WEBINAR ON  'JOURNEY' NATURAL HISTORY STUDY BY SAREPTA

12th February 2022 | Prof. Yvan Torrente

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RUSSIAN-SPEAKING GROUP

The group consists of 12 patients from Russia and Ukraine. The group is coordinated by Irina Derevenets, GFB interpreter.

Coordinator: Irina Derevenets

Join the WhatsApp group by sending an e-mail to Irina:  This email address is being protected from spambots. You need JavaScript enabled to view it.

odnoklassniki: https://ok.ru/group/70000000371558

vkontakte: https://vk.com/club214490109

telegram: https://t.me/+pYQdNYkieRw3Yjk0

Contacts:

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