Social media has profoundly changed the way people with LGMD connect to others — around the corner and around the world. Thankfully, LGMD patients and their family members are now able to access peer support via the internet.
Through Facebook, a number of on-line LGMD related peer support groups have been established. ** An active Facebook account is required **
Some of the LGMD related support groups accessed through Facebook include:
Forums for sharing support, experiences, and thoughts about living with LGMD. (Most are “Closed” Facebook Groups for privacy…individuals must “Request to Join”)
LGMD RELATED BLOGS, PODCASTS & YOUTUBE CHANNELS:
Blogs, YouTube Channels and Podcasts offer a great opportunity for individuals diagnosed with LGMD to share their life experiences, challenges, accomplishments, and passions. They also serve as a great tool to raise awareness of LGMD. Below is a list of LGMD related blogs, YouTube channels and Podcasts that you may enjoy following.