Social media has profoundly changed the way people with LGMD connect to others — around the corner and around the world. Thankfully, LGMD patients and their family members are now able to access peer support via the internet.
LINKS TO MORE THAT 65 LGMD RELATED FACEBOOK GROUPS
Through Facebook, a number of on-line LGMD related peer support groups have been established. ** An active Facebook account is required **
Some of the LGMD related support groups accessed through Facebook include:
Forums for sharing support, experiences, and thoughts about living with LGMD. (Most are “Closed” Facebook Groups for privacy…individuals must “Request to Join”)
Blogs, YouTube Channels and Podcasts offer a great opportunity for individuals diagnosed with LGMD to share their life experiences, challenges, accomplishments, and passions. They also serve as a great tool to raise awareness of LGMD. Below is a list of LGMD related blogs, YouTube channels and Podcasts that you may enjoy following.
