Living with a progressive neuromuscular disease such as Limb Girdle Muscular Dystrophy can be financially challenging at times. There are many disability related costs that public and private insurance do not typically cover. Below are some resources that may be able to provide assistance to help offset the financial burden.
Links to organizations offering grant opportunities:
One of the challenges of living with a rare disease such as Limb Girdle Muscular Dystrophy (LGMD) is finding physicians and other health care specialists who have a good understanding of the disease process.
List of LGMD Specialists – LGMD GRASP Consortium:
LGMD Clinical Trials & Natural History Studies
Clinical Trials and Natural History Studies are vital for advancing research to help find a treatment and cure for LGMD
ClinicalTrials.gov – This is a searchable registry and results database of federally and privately supported clinical trials conducted in the United States and around the world.
Biotech and Pharmaceutical Companies
You can also consult the ORPHANET portal, in the sections