PARTECIPATES IN THE QUALITY PROJECT

Take part in the Quality project, a study on the quality of life of patients with LGMD2C-2D-2E.
Sign up here: This email address is being protected from spambots. You need JavaScript enabled to view it.
Make your voice heard

Register to GFB Patients register

To register to the GFB patient register, simply fill in the registration form in all its fields.

sostieni la ricerca

Support Scientific Research

Any amount you donate to the Research Fund will be a real help in the fight against Beta-sarcoglycanopathies and other forms of muscular dystrophy.

whatsapp del gfb

Sign up to the WhatsApp Group

The group is very large, so it is best to send them to private profiles to receive messages from the association, any replies or comments.

This email address is being protected from spambots. You need JavaScript enabled to view it.
Clinical studies

Clinical studies

 Clinical studies for Sarcoglycanopathies

Clinical trials

Clinical trials

Clinical trials for Sarcoglycanopathies 

Table of patients affected by LGMD 2C-2D-2E in the gfb

In total, the GFB now counts 548 patients affected by sarcoglycanopathy, divided according to the following table:

tabella pazienti

On the GFB Onlus page you can consult the distribution of patients in Italy and abroad.

©2020 GFBONLUS.IT - GRUPPO FAMILIARI BETA-SARCOGLICANOPATIE
+39 328 0075986 This email address is being protected from spambots. You need JavaScript enabled to view it.

Via Civasca 112 23018 Talamona - SO  Italia

Made by Betsoft

Sign Up Today!

Sign up to be included in the GFB Lgmd Patient Network where you will receive cutting edge research updates from the leading experts in the world and also be invited to hear about new clinical trials.
Anyone can join the GFB Lgmd Patient Network.
 
Sign Up