GFB Scientific webinars for LGMD patients
Cell therapy for Sarcoglycanopathies: Alpha-sarcoglycan clinical trial.
With Dr. Simone Spuler, MD
THE QUALITY PROJECT
Take part in the Quality project, a study on the quality of life of patients with LGMD2C-2D-2E.
Sign up here: This email address is being protected from spambots. You need JavaScript enabled to view it.
Make your voice heard
Register to GFB Patients register
To register to the GFB patient register, simply fill in the registration form in all its fields.
GFB Information Point
It is availble from Monday to Friday, from 9 am to 12 pm.
Call 0342 236477 or send an e-mail to
Support Scientific Research
Any amount you donate to the Research Fund will be a real help in the fight against Beta-sarcoglycanopathies and other forms of muscular dystrophy.
Table of patients affected by LGMD 2C-2D-2E in the gfb
In total, the GFB now counts 696 patients affected by sarcoglycanopathy, divided according to the following table:
On the GFB Onlus page you can consult the distribution of patients in Italy and abroad.
