News

NEWS

EVENTS 2023

20 March 2023 | Events

Sarepta Therapeutics Announces Initiation of VOYAGENE, a Clinical Study of SRP-9003 for the Treatment of LGMD2E/R4

24 February 2023 | News

Sarepta Therapeutics JOURNEY PROJECT update

24 February 2023 | News

GFB SCIENTIFIC WEBINAR RECORDING | 10th february 2023

13 February 2023 | News

GFB SCIENTIFIC WEBINAR RECORDING | 25TH NOVEMBER 2022

29 November 2022 | News

GFB SCIENTIFIC WEBINAR RECORDING | 15TH NOVEMBER 2022

17 November 2022 | News

GFB AT THE AIM CONGRESS IN MATERA, ITALY

17 October 2022 | News

GFB UPCOMING EVENTS

17 October 2022 | News

Natural history study journey in europe

17 October 2022 | News

GFB AT THE WMS CONGRESS IN CANADA

12 October 2022 | News

The GFB group of arabic patients is here

11 October 2022 | News

The GFB group of Russian-speaking patients is here

10 October 2022 | News

Called to action when your son has LGMD

10 October 2022 | Experiences and stories

A story of inner strength: Raising two kids with LGMD

16 September 2022 | Experiences and stories

GFB at the Myology 2022 congress

08 September 2022 | News

INDIVIDUAL WITH LGMD: Arthur

18 August 2022 | Experiences and stories

Making the best of an early LGMD diagnosis

08 August 2022 | Experiences and stories

join the pfdd event on the 23rd september

02 August 2022 | News

GFB E-POSTER PRESENTATION AT THE ICNMD 2022 CONGRESS

11 July 2022 | News

2022 LGMD Global Advocacy Summit

31 May 2022 | News

QUALITY PROJECT: 200 COMPLETED QUESTIONNAIRES

22 April 2022 | News

GLOBAL ADVOCACY SUMMIT

22 April 2022 | News

GFB ON SPAZIO LIBERO - HOPE FOR RESEARCH

14 April 2022 | News

INDIVIDUAL WITH LGMD: Osman

14 April 2022 | Experiences and stories

Teaching what she knows: the story of daneal

06 April 2022 | Experiences and stories

GFB and the situation of patients in Ukraine

08 March 2022 | News

Events 2022

03 March 2022 | Events

2022 - PRESS RELEASES

16 February 2022 | GFB'S Press Releases

LET'S PARTICIPATE AT THE RARE DISEASE DAY 2022

16 February 2022 | News

WATCH THE GFB WEBINAR ON THE NATURAL HISTORY STUDY JOURNEY

15 February 2022 | News

GFB'S NATURAL HISTORY STUDY

07 February 2022 | News

JOURNEY NATURAL HISTORY STUDY

07 February 2022 | News

gfb information point

05 December 2021 | News

Events 2021

05 December 2021 | Events

GFB SCIENTIFIC WEBINAR FOR LGMD PATIENTS: 25TH NOVEMBER 2022

17 November 2021 | News

Dr. Yvan Torrente receives the "Neurologist of the Year 2021" award

07 November 2021 | News

GFB SCIENTIFIC WEBINAR FOR LGMD PATIENTS: 15TH NOVEMBER 2022

02 November 2021 | News

Perseverance pays off

28 October 2021 | Experiences and stories

GFB SPOT - INTERNATIONAL LGMD CONFERENCE 2021

18 September 2021 | News

LGMD INTERNATIONAL CONFERENCE 2021 VIDEOS

18 September 2021 | News

The early days after an LGMD diagnosis

20 August 2021 | Experiences and stories

GFB INTERVIEW AT THE ITALIAN NATIONAL TELEVISION

14 July 2021 | News

Sarepta Therapeutics’ Investigational Gene Therapy SRP-9003 for the Treatment of Limb-Girdle Muscular Dystrophy Type 2E Shows Sustained Expression and Functional Improvements 2 Years After Administration

01 April 2021 | News

ATAMYO THERAPEUTICS: THE NEW WEBSITE IS NOW ONLINE

12 February 2021 | News

LET'S PARTICIPATE WITH GFB AT THE RARE DISEASE DAY - FEBRUARY 28th 2021

13 January 2021 | News

2021 - PRESS RELEASES

13 January 2021 | GFB'S Press Releases

LGMD CAB

21 December 2020 | Scientific research

sarepta community bulletin: covid-19 vaccination and gene therapy

18 December 2020 | News

parent project usa: watch covid-19 vaccination & duchenne what you need to know

12 December 2020 | News

MANDINE: innocence in combat

04 December 2020 | Experiences and stories

Matis, silent warrior with LGMD2D (or LGMDR3)

03 December 2020 | Experiences and stories

Mélanie, explorer of the world and of science

02 December 2020 | Experiences and stories

The Story of Arthur with Gamma-Sarcoglycanopathy

01 December 2020 | Experiences and stories

Genethon's first LGMD biotech

29 November 2020 | News

international webinar about LGMD and gene therapy

28 November 2020 | News

Sarepta Therapeutics Investigational Gene Therapy SRP-9003 for the Treatment of Limb-Girdle Muscular Dystrophy Type 2E

26 November 2020 | News

The man investigating his rare disease: "There are many questions to be answered"– Carles Interview

29 October 2020 | Experiences and stories

CHRIS CALABRESE STORY AND HIS YOUTUBE CHANNEL

23 October 2020 | Experiences and stories

patient-led listening sessions summaries: LGMD

20 October 2020 | Experiences and stories

PONTI TELEMEDICINE PROJECT

14 October 2020 | News

MUSCLE DIVERSITY THE PROJECT BY CARLES SANCHEZ RIERA

04 October 2020 | Experiences and stories

SAREPTA THERAPEUTICS HAS ANNOUNCED POSITIVE DATA FOR SRP-9003 GENE THERAPY TRIAL

02 October 2020 | News

2020 - PRESS RELEASES

30 September 2020 | GFB'S Press Releases

EMBRACING THE JOURNEY WITH LGMD: KATHERINE

29 September 2020 | Experiences and stories

Building an LGMD support network: Rania

22 September 2020 | Experiences and stories

One family's diagnostic journey to LGMD: Ben and Nikki

15 September 2020 | Experiences and stories

When LGMD is misdiagnosed: Chris

10 September 2020 | Experiences and stories

THE SIGN AND SYMTOMPS THAT POINTED TO LGMD: AUSTIN

01 September 2020 | Experiences and stories

Events 2020

18 August 2020 | Events

MEETINGS AND CONGRESSES 2020

13 August 2020 | Meeting and conferences

My Life with Limb-Girdle Muscular Dystrophy (LGMD2E Beta-Sarcoglycanopathy) AND Gene therapy!

29 July 2020 | Experiences and stories

carles sanchez riera: Tv interview

24 July 2020 | Experiences and stories

Everybody to the mountains with the “trekking chair”

23 July 2020 | Events

OWEN STECKLER

28 June 2020 | Experiences and stories

DYSTROPHY AND ICTUS: "BUT NOW I GRADUATE" - MURARO ALESSIA

30 January 2020 | Experiences and stories

WHEN AN ASSISTANCE DOG IMPROVES YOUR LIFE

09 January 2020 | Experiences and stories

2019 - PRESS RELEASES

31 December 2019 | GFB'S Press Releases

Events 2019

31 December 2019 | Events

Patrick - Lgmd Awareness Foundation - November 21th 2019

29 November 2019 | Experiences and stories

INDEPENDENCE IS TO KNOW HOW TO MEASURE WITH YOURSELF - MARTA MIGLIOSI

28 November 2019 | Experiences and stories

DR. JERRY MENDELL STORY

01 October 2019 | Experiences and stories

The Frech Lgmd patient group - LGMD Awareness Day - March 27th 2019

27 March 2019 | Experiences and stories

BEATRICE AND MARCO STORY AND THE BIRTH OF GFB

17 March 2019 | Experiences and stories

MEETINGS AND CONGRESSES 2019

31 January 2019 | Meeting and conferences

Conquistando Escalones - LGMD Awareness Day - January 27th 2019

27 January 2019 | Experiences and stories

INTERVIEW WITH LAURA, ALESSIA AND MATTEO – SPAZIO LIBERO – RAI PARLAMENTO

15 January 2019 | Experiences and stories

2018 - PRESS RELEASES

31 December 2018 | GFB'S Press Releases

Events 2018

31 December 2018 | Events

Carles's interview – Spazio Libero

30 November 2018 | Experiences and stories

GFB ONLUS - LGMD Awareness Foundation - November 18th 2018

18 November 2018 | Experiences and stories

HEIDI - lgmd awareness foundation - november 6th 2018

06 November 2018 | Experiences and stories

dr. linda lowes - lgmd awareness foundation -

24 October 2018 | Experiences and stories

majed - lgmd awareness foundation - July 13th 2018

13 July 2018 | Experiences and stories

dr. louise rodino kaplac - lgmd awareness foundation - march 4th 2018

04 March 2018 | Experiences and stories

MEETINGS AND CONGRESSES 2018

31 January 2018 | Meeting and conferences

2017 - PRESS RELEASES

31 December 2017 | GFB'S Press Releases

Events 2017

31 December 2017 | Events

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NEWS

EVENTS 2023

Sarepta Therapeutics Announces Initiation of VOYAGENE, a Clinical Study of SRP-9003 for the Treatment of LGMD2E/R4

Sarepta Therapeutics JOURNEY PROJECT update

GFB SCIENTIFIC WEBINAR RECORDING | 10th february 2023

GFB SCIENTIFIC WEBINAR RECORDING | 25TH NOVEMBER 2022

GFB SCIENTIFIC WEBINAR RECORDING | 15TH NOVEMBER 2022

GFB AT THE AIM CONGRESS IN MATERA, ITALY

GFB UPCOMING EVENTS

Natural history study journey in europe

GFB AT THE WMS CONGRESS IN CANADA

The GFB group of arabic patients is here

The GFB group of Russian-speaking patients is here

Called to action when your son has LGMD

A story of inner strength: Raising two kids with LGMD

GFB at the Myology 2022 congress

INDIVIDUAL WITH LGMD: Arthur

Making the best of an early LGMD diagnosis

join the pfdd event on the 23rd september

GFB E-POSTER PRESENTATION AT THE ICNMD 2022 CONGRESS

2022 LGMD Global Advocacy Summit

QUALITY PROJECT: 200 COMPLETED QUESTIONNAIRES

GLOBAL ADVOCACY SUMMIT

GFB ON SPAZIO LIBERO - HOPE FOR RESEARCH

INDIVIDUAL WITH LGMD: Osman

Teaching what she knows: the story of daneal

GFB and the situation of patients in Ukraine

Events 2022

2022 - PRESS RELEASES

LET'S PARTICIPATE AT THE RARE DISEASE DAY 2022

WATCH THE GFB WEBINAR ON THE NATURAL HISTORY STUDY JOURNEY

GFB'S NATURAL HISTORY STUDY

JOURNEY NATURAL HISTORY STUDY

gfb information point

Events 2021

GFB SCIENTIFIC WEBINAR FOR LGMD PATIENTS: 25TH NOVEMBER 2022

Dr. Yvan Torrente receives the "Neurologist of the Year 2021" award

GFB SCIENTIFIC WEBINAR FOR LGMD PATIENTS: 15TH NOVEMBER 2022

Perseverance pays off

GFB SPOT - INTERNATIONAL LGMD CONFERENCE 2021

LGMD INTERNATIONAL CONFERENCE 2021 VIDEOS

The early days after an LGMD diagnosis

GFB INTERVIEW AT THE ITALIAN NATIONAL TELEVISION

Sarepta Therapeutics’ Investigational Gene Therapy SRP-9003 for the Treatment of Limb-Girdle Muscular Dystrophy Type 2E Shows Sustained Expression and Functional Improvements 2 Years After Administration

the story of shanna who has LGMD2C (or LGMDR5)

the story of johann: Patient with α-Sarcoglycanopathy (LGMD-R3)

The Story of Apollo, Patient with Gamma-Sarcoglycanopathy (LGMD-R5)

ATAMYO THERAPEUTICS: THE NEW WEBSITE IS NOW ONLINE

LET'S PARTICIPATE WITH GFB AT THE RARE DISEASE DAY - FEBRUARY 28th 2021

2021 - PRESS RELEASES

LGMD CAB

sarepta community bulletin: covid-19 vaccination and gene therapy

parent project usa: watch covid-19 vaccination & duchenne what you need to know

MANDINE: innocence in combat

Matis, silent warrior with LGMD2D (or LGMDR3)

Mélanie, explorer of the world and of science

The Story of Arthur with Gamma-Sarcoglycanopathy

Genethon's first LGMD biotech

international webinar about LGMD and gene therapy

Sarepta Therapeutics Investigational Gene Therapy SRP-9003 for the Treatment of Limb-Girdle Muscular Dystrophy Type 2E

The man investigating his rare disease: "There are many questions to be answered"– Carles Interview

CHRIS CALABRESE STORY AND HIS YOUTUBE CHANNEL

patient-led listening sessions summaries: LGMD

PONTI TELEMEDICINE PROJECT

MUSCLE DIVERSITY THE PROJECT BY CARLES SANCHEZ RIERA

SAREPTA THERAPEUTICS HAS ANNOUNCED POSITIVE DATA FOR SRP-9003 GENE THERAPY TRIAL

2020 - PRESS RELEASES

EMBRACING THE JOURNEY WITH LGMD: KATHERINE

Building an LGMD support network: Rania

One family's diagnostic journey to LGMD: Ben and Nikki

When LGMD is misdiagnosed: Chris

THE SIGN AND SYMTOMPS THAT POINTED TO LGMD: AUSTIN

Events 2020

MEETINGS AND CONGRESSES 2020

My Life with Limb-Girdle Muscular Dystrophy (LGMD2E Beta-Sarcoglycanopathy) AND Gene therapy!

carles sanchez riera: Tv interview

Everybody to the mountains with the “trekking chair”

OWEN STECKLER

DYSTROPHY AND ICTUS: "BUT NOW I GRADUATE" - MURARO ALESSIA

WHEN AN ASSISTANCE DOG IMPROVES YOUR LIFE