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MEETINGS AND CONGRESSES 2020

January 20, 2020: Webinar Compassionate Use of Risdiplam - SMA  Families  Italy

February 3, 2020: Individual Disability Project Conference - Anffass - Nuova Olonio SO Italy

April 21, 2020: Covid-19 and Rare Diseases Webinar - Istituto Superiore di Sanità - Rome Italy

June 18, 2020: Webinar Updates on Limb Girdle Muscular Dystrophy (LGMD) - Uildm Italy

June 23, 2020: Webinar LGMD Assessment, Natural History Studies and Virtual Enrollment - Nationwide Childrens Hospital - Columbus Ohio USA

September 11, 2020: Webinar Introducing a new lgmd natural history study - Speak Foundation – USA