Experiences: stories

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Experiences and stories

Sick, family, doctors and volunteers tell their experience

INDIVIDUAL WITH LGMD: Jacob

05 October 2023 | Experiences and stories

what muscular dystrophy did to me...?

11 September 2023 | Experiences and stories

INDIVIDUAL WITH LGMD: PETER

26 April 2023 | Experiences and stories

Called to action when your son has LGMD

10 October 2022 | Experiences and stories

A story of inner strength: Raising two kids with LGMD

16 September 2022 | Experiences and stories

INDIVIDUAL WITH LGMD: Arthur

18 August 2022 | Experiences and stories

Making the best of an early LGMD diagnosis

08 August 2022 | Experiences and stories

INDIVIDUAL WITH LGMD: Osman

14 April 2022 | Experiences and stories

Teaching what she knows: the story of daneal

06 April 2022 | Experiences and stories

Perseverance pays off

28 October 2021 | Experiences and stories

The early days after an LGMD diagnosis

20 August 2021 | Experiences and stories

the story of shanna who has LGMD2C (or LGMDR5)

07 March 2021 | Experiences and stories

the story of johann: Patient with α-Sarcoglycanopathy (LGMD-R3)

07 March 2021 | Experiences and stories

The Story of Apollo, Patient with Gamma-Sarcoglycanopathy (LGMD-R5)

06 March 2021 | Experiences and stories

MANDINE: innocence in combat

04 December 2020 | Experiences and stories

Matis, silent warrior with LGMD2D (or LGMDR3)

03 December 2020 | Experiences and stories

Mélanie, explorer of the world and of science

02 December 2020 | Experiences and stories

The Story of Arthur with Gamma-Sarcoglycanopathy

01 December 2020 | Experiences and stories

carles interview

The man investigating his rare disease: "There are many questions to be answered"– Carles Interview

29 October 2020 | Experiences and stories

cris calabrese

CHRIS CALABRESE STORY AND HIS YOUTUBE CHANNEL

23 October 2020 | Experiences and stories

patient-led listening sessions summaries: LGMD

20 October 2020 | Experiences and stories

diversità muscolare

MUSCLE DIVERSITY THE PROJECT BY CARLES SANCHEZ RIERA

04 October 2020 | Experiences and stories

EMBRACING THE JOURNEY WITH LGMD: KATHERINE

29 September 2020 | Experiences and stories

Building an LGMD support network: Rania

22 September 2020 | Experiences and stories

One family's diagnostic journey to LGMD: Ben and Nikki

15 September 2020 | Experiences and stories

When LGMD is misdiagnosed: Chris

10 September 2020 | Experiences and stories

THE SIGN AND SYMTOMPS THAT POINTED TO LGMD: AUSTIN

01 September 2020 | Experiences and stories

My Life with Limb-Girdle Muscular Dystrophy (LGMD2E Beta-Sarcoglycanopathy) AND Gene therapy!

29 July 2020 | Experiences and stories

carles sanchez riera: Tv interview

24 July 2020 | Experiences and stories

OWEN STECKLER

28 June 2020 | Experiences and stories

Distrofia e ictus :"Ma ora mi laureo" - Muraro Alessia

DYSTROPHY AND ICTUS: "BUT NOW I GRADUATE" - MURARO ALESSIA

30 January 2020 | Experiences and stories

WHEN AN ASSISTANCE DOG IMPROVES YOUR LIFE

09 January 2020 | Experiences and stories

Patrick - Lgmd Awareness Foundation - November 21th 2019

29 November 2019 | Experiences and stories

Indipendenza è sapersi misurare con se stessi - Marta Migliosi

INDEPENDENCE IS TO KNOW HOW TO MEASURE WITH YOURSELF - MARTA MIGLIOSI

28 November 2019 | Experiences and stories

dr. jerry mendel video

DR. JERRY MENDELL STORY

01 October 2019 | Experiences and stories

The Frech Lgmd patient group - LGMD Awareness Day - March 27th 2019

27 March 2019 | Experiences and stories

BEATRICE AND MARCO STORY AND THE BIRTH OF GFB

17 March 2019 | Experiences and stories

Conquistando Escalones - LGMD Awareness Day - January 27th 2019

27 January 2019 | Experiences and stories

INTERVIEW WITH LAURA, ALESSIA AND MATTEO – SPAZIO LIBERO – RAI PARLAMENTO

15 January 2019 | Experiences and stories

Carles's interview – Spazio Libero

30 November 2018 | Experiences and stories

GFB ONLUS - LGMD Awareness Foundation - November 18th 2018

GFB ONLUS - LGMD Awareness Foundation - November 18th 2018

18 November 2018 | Experiences and stories

HEIDI - lgmd awareness foundation - november 6th 2018

06 November 2018 | Experiences and stories

dr. linda lowes - lgmd awareness foundation -

24 October 2018 | Experiences and stories

majed - lgmd awareness foundation - July 13th 2018

13 July 2018 | Experiences and stories

dr. louise rodino kaplac - lgmd awareness foundation - march 4th 2018

04 March 2018 | Experiences and stories

Alessia's Story - Spazio Libero - december 1, 2017

01 December 2017 | Experiences and stories

THE CARDIAC TRANSPLANT OF ALESSIA

16 August 2017 | Experiences and stories

radio finestra aperta

INTERVIEW WITH BEATRICE VOLA - RADIO FINESTRAPERTA

16 July 2017 | Experiences and stories

having two kids with muscular dystrophy has changed how we view the future. We sieze every chance to enjoy the time we have

11 April 2017 | Experiences and stories

from canazei in italy: rosanna

15 November 2016 | Experiences and stories

ALESSIA: A NEW LIFE WITH JARVIK 2000

21 May 2016 | Experiences and stories

Messaggio di Rosanna a Emanuela

MESSAGE FROM ROSANNA TO EMANUELA

20 November 2014 | Experiences and stories

la storia di emanuela

EMANUELA's STORY

20 November 2014 | Experiences and stories

Alessia Muraro negli studi RAI in occasione di Telethon

ALESSIA MURARO IN THE RAI STUDIOS FOR TELETHON

31 December 2013 | Experiences and stories

EMANUELA POZZAN – FIRST NATIONAL CONGRESS GFBET

19 April 2013 | Experiences and stories

PAOLA MAGGIOLO – FIRST NATIONAL CONGRESS GFB

19 April 2013 | Experiences and stories

LAURA: THERAPEUTIC AND REHABILITATIVE INDICATIONS IN BETA-SARCOGLICANOPATHIES

31 May 2012 | Experiences and stories