GFB SCIENTIFIC WEBINARS

GFB organizes periodic scientific webinars on LGMDs on gene therapy studies, natural history studies and patient registries.

WEBINAR ON LIMB-GIRDLE MUSCULAR DYSTROPHY GUIDE FOR FAMILIES, CAREGIVERS AND HCPS

16th Octrober 2026 | Dr. Orest Semeryak, Director of the Referral Center for Neuromuscular Diseases at the Lviv Regional Clinical Hospital (Ukraine)

WEBINAR ON THE NEUROMUSCULAR JUNCTION IN SARCOGLYCANOPATHIES 

26th September 2025 | Dr. Carles Sanchez Riera, Histology and embryology unit at La Sapienza University, Rome

WEBINAR PATIENT STEM CELLS (iPSCs) AND THEIR ROLE IN LGMDs TREATMENT

11th April 2025 | Dr. Chiara Villa (PhD Stem Cell Laboratory, University of Milan) and Dr. Angela Serena Maione (PhD Unit of Vascular Biology and Regenerative Medicine, Central Facility for Cardiac Modeling and Cardiac Function, Centro Cardiologico Monzino IRCCS, Milan).  

WEBINAR ON THE ONGOING CLINICAL TRIALS ON LIMB-GIRDLE MUSCULAR DYSTROPHIES

28th February 2025 | Dr. Jordi Diaz Manera  (John Walton Muscular Dystrophy Research Center)  

WEBINAR ON THE IMPORTANCE OF ACCURATE GENETIC DIAGNOSIS IN SARCOGLYCANOPATHIES

13th December 2024 | Dr. Leonela Luce (John Walton Muscular Dystrophy Research Centre)

WEBINAR ON CELL THERAPY FOR SARCOGLYCANOPATHIES

24th March 2023 | Dr. Simone Spuler (Charité, University Medicine Berlin, Germany)

WEBINAR ON CFTR CORRECTORS IN SARCOGLYCANOPATHIES: A POSSIBLE DRUG THERAPY

10th February 2023  |  Dr. Dorianna Sandonà (Department of Biomedical Sciences, University of Padua, Italy) 

WEBINAR ON UPDATES ON ONGOING GENE THERAPIES DEVELOPED BY ATAMYO THERAPEUTICS

25th November 2022  | Prof. Isabelle Richard (DR1 CNRS Genethon - France)

WEBINAR ON UPDATES ON ONGOING GENE THERAPIES PROJECTS FOR LGMDs

15th November 2022 | Prof. Volker Straub (University of Newcastle)

WEBINAR ON  'JOURNEY' NATURAL HISTORY STUDY BY SAREPTA

12th February 2022 | Prof. Yvan Torrente