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Limb-Girdle Muscular Dystrophy Guide for Families, Caregivers & HCPs - Access the webinar registration

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The neuromuscular junction in Sarcoglycanopathies - Access the webinar registration

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A Guide for Families with LGMD

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International LGMD Conference 2025

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Patient stem cells (iPSCs) and their role in LGMDs treatment - Access the webinar registration

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Ongoing clinical trials on Limb-Girdle Muscular Dystrophies - Access the webinar registration

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GFB NEWSLETTER 3-2024

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SAVE AHMED AND HIS FAMILY FROM GAZA

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ITALIAN Minister of Disability'S VISIT FOR NEW GFB HEADQUARTERS

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GFB UPCOMING EVENTS

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QUALITY PROJECT UPDATES

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EVENTS 2024

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A Trial to Learn About A Gene Therapy as a Possible Treatment for Limb Girdle Muscular Dystrophy 2E/​R4 (EMERGENE)

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Gene therapy for LGMD2E/R4: phase 1/2 trial results

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GFB INTERVIEW ON SPAZIO LIBERO | DEC. 12, 2023

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THIRD IBEROAMERICAN LGMD DAY

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INTERNATIONAL LGMD CONFERENCE 2023

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National Conference on LGMD of the Rare Academy, National Centre for Rare Diseases (CNMR) of the Russian Federation

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INDIVIDUAL WITH LGMD: Jacob

| Experiences and stories

GFB AT THE EAMDA 2023 CONGRESS

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ATA-200, Atamyo Therapeutics’ Gene Therapy to Treat Limb-Girdle Muscular Dystrophy Type 2C/R5...

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what muscular dystrophy did to me...?

| Experiences and stories

NEWSLETTER N.5

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NEWSLETTER N.4

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GFB AT CONGRESS AIM 2023

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NEWSLETTER N.3

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INDIVIDUAL WITH LGMD: PETER

| Experiences and stories

PHOTOS AND VIDEOS | 10 YEARS OF GFB EVENT

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GFB SCIENTIFIC WEBINAR RECORDING | 24TH MARCH 2023

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EVENTS 2023

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Sarepta Therapeutics Announces Initiation of VOYAGENE, a Clinical Study of SRP-9003 for the Treatment of LGMD2E/R4

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Sarepta Therapeutics JOURNEY PROJECT update

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GFB SCIENTIFIC WEBINAR RECORDING | 10th february 2023

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GFB SCIENTIFIC WEBINAR RECORDING | 25TH NOVEMBER 2022

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GFB SCIENTIFIC WEBINAR RECORDING | 15TH NOVEMBER 2022

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GFB AT THE AIM CONGRESS IN MATERA, ITALY

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Natural history study journey in europe

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GFB AT THE WMS CONGRESS IN CANADA

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The GFB group of arabic patients is here

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The GFB group of Russian-speaking patients is here

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Called to action when your son has LGMD

| Experiences and stories

A story of inner strength: Raising two kids with LGMD

| Experiences and stories

GFB at the Myology 2022 congress

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INDIVIDUAL WITH LGMD: Arthur

| Experiences and stories

Making the best of an early LGMD diagnosis

| Experiences and stories

join the pfdd event on the 23rd september

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GFB E-POSTER PRESENTATION AT THE ICNMD 2022 CONGRESS

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2022 LGMD Global Advocacy Summit

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QUALITY PROJECT: 200 COMPLETED QUESTIONNAIRES

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GLOBAL ADVOCACY SUMMIT

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GFB ON SPAZIO LIBERO - HOPE FOR RESEARCH

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INDIVIDUAL WITH LGMD: Osman

| Experiences and stories

Teaching what she knows: the story of daneal

| Experiences and stories

GFB and the situation of patients in Ukraine

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Events 2022

| Events

2022 - PRESS RELEASES

| GFB'S Press Releases

LET'S PARTICIPATE AT THE RARE DISEASE DAY 2022

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WATCH THE GFB WEBINAR ON THE NATURAL HISTORY STUDY JOURNEY

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GFB'S NATURAL HISTORY STUDY

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JOURNEY NATURAL HISTORY STUDY

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gfb information point

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Events 2021

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GFB SCIENTIFIC WEBINAR FOR LGMD PATIENTS: 25TH NOVEMBER 2022

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Dr. Yvan Torrente receives the "Neurologist of the Year 2021" award

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GFB SCIENTIFIC WEBINAR FOR LGMD PATIENTS: 15TH NOVEMBER 2022

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Perseverance pays off

| Experiences and stories

GFB SPOT - INTERNATIONAL LGMD CONFERENCE 2021

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LGMD INTERNATIONAL CONFERENCE 2021 VIDEOS

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The early days after an LGMD diagnosis

| Experiences and stories

GFB INTERVIEW AT THE ITALIAN NATIONAL TELEVISION

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Sarepta Therapeutics’ Investigational Gene Therapy SRP-9003 for the Treatment of Limb-Girdle Muscular Dystrophy Type 2E Shows Sustained Expression and Functional Improvements 2 Years After Administration

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the story of shanna who has LGMD2C (or LGMDR5)

| Experiences and stories

the story of johann: Patient with α-Sarcoglycanopathy (LGMD-R3)

| Experiences and stories

The Story of Apollo, Patient with Gamma-Sarcoglycanopathy (LGMD-R5)

| Experiences and stories

ATAMYO THERAPEUTICS: THE NEW WEBSITE IS NOW ONLINE

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LET'S PARTICIPATE WITH GFB AT THE RARE DISEASE DAY - FEBRUARY 28th 2021

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2021 - PRESS RELEASES

| GFB'S Press Releases

LGMD CAB

| Scientific research

sarepta community bulletin: covid-19 vaccination and gene therapy

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parent project usa: watch covid-19 vaccination & duchenne what you need to know

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MANDINE: innocence in combat

| Experiences and stories

Matis, silent warrior with LGMD2D (or LGMDR3)

| Experiences and stories

Mélanie, explorer of the world and of science

| Experiences and stories

The Story of Arthur with Gamma-Sarcoglycanopathy

| Experiences and stories

Genethon's first LGMD biotech

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international webinar about LGMD and gene therapy

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Sarepta Therapeutics Investigational Gene Therapy SRP-9003 for the Treatment of Limb-Girdle Muscular Dystrophy Type 2E

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The man investigating his rare disease: "There are many questions to be answered"– Carles Interview

| Experiences and stories

CHRIS CALABRESE STORY AND HIS YOUTUBE CHANNEL

| Experiences and stories

patient-led listening sessions summaries: LGMD

| Experiences and stories

PONTI TELEMEDICINE PROJECT

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MUSCLE DIVERSITY THE PROJECT BY CARLES SANCHEZ RIERA

| Experiences and stories

SAREPTA THERAPEUTICS HAS ANNOUNCED POSITIVE DATA FOR SRP-9003 GENE THERAPY TRIAL

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2020 - PRESS RELEASES

| GFB'S Press Releases

EMBRACING THE JOURNEY WITH LGMD: KATHERINE

| Experiences and stories

Building an LGMD support network: Rania

| Experiences and stories

One family's diagnostic journey to LGMD: Ben and Nikki

| Experiences and stories

When LGMD is misdiagnosed: Chris

| Experiences and stories

THE SIGN AND SYMTOMPS THAT POINTED TO LGMD: AUSTIN

| Experiences and stories

Events 2020

| Events