Watch the recording of the webinar held on October 16th 2025 about the Limb-Girdle Muscular Dystrophy Guide for Families, Caregivers & HCPs with the partecipation of Dr. Orest Semeryak, Director of the Referral Center for Neuromuscular Diseases at the Lviv Regional Clinical Hospital (Ukraine).
Watch the recording of the webinar held on September 26th 2025 about the neuromuscular junction in Sarcoglycanopathies with the partecipation of Dr. Carles Sanchez Riera, Histology and embryology unit at La Sapienza University, Rome
The LGMD Family Guide is now available online on the TREAT-NMD® website.
This guide has been developed to support individuals and families affected by LGMD and brings together contributions from nine international clinical teams, each led by a key opinion leader and a patient advocacy representative, to ensure the content is both accurate and accessible.
It contains:
The guide was officially launched during a dedicated session at the International LGMD Conference in Orlando, where TREAT-NMD representatives introduced it to the global community.
At the International LGMD Conference 2025, updates on the latest research and new information from the pharmaceutical industry will be presented, along with leading global biotechnology companies.
GRASP-LGMD researchers, among the world's best in the LGMD field, will participate in the event to provide first-hand information on clinical studies.
The GFB Foundation is also participating in the Orlando Conference with its representative, Dr. Carles Sanchez Riera (researcher at the University of Rome La Sapienza) who will bring 3 posters to the conference, concerning the Diagnosis, Quality, and Neuromuscular Junction projects.
The objective of the 2025 International Conference on Limb-Girdle Muscular Dystrophy is to bring together an unprecedented number of people affected by LGMD, renewing the commitment to awareness and treatments.
Rewatch the webinar held on April 11th, 2025 about patient stem cells and their role in LGMDs treatment with Dr. Chiara Villa (PhD Stem Cell Laboratory, University of Milan) and Dr. Angela Serena Maione (PhD Unit of Vascular Biology and Regenerative Medicine, Central Facility for Cardiac Modeling and Cardiac Function, Centro Cardiologico Monzino IRCCS, Milan).
