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EVENTS 2024

August 2023- January 2024 | Third "You donate... they get cured" lottery

28 January 2024 | Lunch and draw Third raffle "You donate... they get cured" 

24 February 2024 | Rare Disease Day in Padua, Italy

2 March 2024 | GFB's participation in the meeting "Rare diseases: let's talk about it" in Bosisio Parini (LC) - Italy

13 April 2024 | GMN - Neuromuscular Disease Day 2024 - Italy

22-25 April 2024 | Myology 2024 congress in Paris https://myology2024.org/

5-8 June 2024 | AIM Congress 2024 in Rome (Italy)

25 July - 1 December 2024 | Fourth charity raffle ‘You donate .... they get cured’

25-29 October 2024 | GFB will participate in the ICNMD 2024 congress in Perth - Australia with two scientific posters

8-10 November 2024 | Dr. Sanchez Carles Riera will attend the ENMC Workshop - The Netherlands

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EVENTS 2023

10 February 2023  | Webinar held by Dr. Dorianna Sandonà

28 February 2023  | GFB's participation in Rare Disease Day 2023

28 February 2023  | 10th anniversary of GFB

10-11 March 2023  | GFB's participation in the 8th National Congress of Paediatric Neurology, organised by ATNEA (Tunisian Association of Child and Adolescent Neurology) - Tunisia

12-14 March 2023  | GFB's participation in the 7th Conference of Associations in the Network (AIR) of the Telethon Foundation

18 March 2023  | GFB's participation in Neuromuscular Disease Day

24 March 2023  | Scientific webinar held by Dr. Simone Spuler

10 April 2023 | Cruise on Lake Como for 10 years of GFB and 10 years of research

3 June 2023 | Dundunrun - non-competitive walk - Talamona SO

8-10 June 2023 | GFB's participation in the AIM Congress - Padua, Italy

30 September - 1 October 2023 | GFB's participation in the EAMDA International Conference on Neuromuscular Diseases (NMD)

27 October 2023  | National Conference on LGMD of the 'Rare Academy' of the SRMO (Russian Society of Orphan Diseases), the section will be on from 3 p.m. to 4.20 p.m. Moscow time

27-29 October 2023  | GFB's participation in the INTERNATIONAL CONFERENCE ON LGMDs to be held in Washington (USA) from 27-29 October 2023. More information at the link: https://thespeakfoundation.com/ 

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Events 2022

GFB webinar on Natural history study JOURNEY - 12th February 2022

GFB participated at Rare Disease Day - 28th February 2022

GFB 9th interview on Spazio Libero Rai Parlamento Rai 3  - Updates on the scientific research - "Spazio Libero" Rai Parlamento Rai 3  -  8th March 2022

GFB is participating at the "Never stop moving" documentary premiere - Barcelona  -  9th March 2022

GFB is participating at the Neuromuscular Disease Day - GMN - Italy  -  12th March 2022

Doctor Carles Sanchez Riera is presenting at LGMD Global Advocacy Summit  - 2022 LGMD Global Advocacy Summit GFB presentation from minute 01.08.20-  20th May 2022

GFB abstract and poster presentation by GFB interpreter Claudia Paniga at ICNMD 2022  International Congress on neuromuscular diseases Brussels (Belgium)  https://icnmd.org/  - 5-9th July 2022 

GFB Doctor Carles Sanchez Riera is participating and presenting an abstract and poster at Myology 2022 - Nice (France) http://www.myology2022.org/  - 12-15th September 2022

GFB is participating at PFDD (Patient focused drug development)   https://thespeakfoundation.com/pfdd  -  23th September 2022

GFB Poster and abstract presentation at World muscle society 2022 - Halifax (Canada) -- 11-15th October 2022

GFB abstract and poster presentation at XXII Congresso Nazionale AIM - Matera  (Italy)  - 19-22th October 2022

Scientific webinar with Dr. Volker Straub of the University of Newcastle (UK) - 15th November 2022 

Scientific webinar with prof. Isabelle Richard - Genethon (France) - 25th November 2022

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Events 2021

GFB participated at Rare Disease day 202128 febbraio 2021           

GFB participated at GNM - Giornata delle Malattie neuromuscolari (Neuromuscular diseases day)  - 13 marzo 2021

GFB interview at Spazio Libero Italian TV - Rai Parlamento Rai 3 - 14 giugno 2021

GFB participated at LGMD International conference - 17-20 settembre 2021

GFB participated at the Webinar oganised by AIM Associazione Italiana Miologia (Italian myology association) - 4 dicembre 2021

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Events 2020

eventi 2020

 May 2020 - First GFB zoom meeting with Italian patients

GFB evento 2020 1

June 30th 2020 - Meeting zoom with the Premana group, Friends of Gloria and Samuel

GFB evento 2020 2

August 13th 2020 - Second GFB zoom meeting with Italian patients

GFB evento 2020 3

September 30th  2020 - Third GFB zoom meeting in English with international patients - LET'S MEET

GFB evento 2020 4

Dicember 29th 2020 - Forth GFB zoom meeting with italian patients

gruppo quarto incontro 300

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